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The U.K. struggles with its lack of organ donors

… as a pair of renal Carnegie-Mellon computer scientists develop a terrific new algorithm to help donors who don’t match their desired recipients find people they do match — so they can keep paying forward the generous deed of donating their kidneys.

This matters so much to people with PKD because it’s not just they, themselves, who will need a new kidney. PKD runs in families, so, as the article from the U.K. shows (toward the bottom), they need to worry about where the next generation will get one. As the waiting list gets longer and longer, people really need systems like the one created at Carnegie-Mellon. — Kenny

Posted on January 22nd, 2008 | Filed under generosity, kidney, organ donation, PKD, renal | No Comments »

…. says the Oregonian, because that stranger agrees to donate a kidney to the coach’s mother, who has PKD.

It’s called a “paired living donor exchange,” and it’s the coolest thing since Eli Manning’s performance yesterday.

— Kenny

Posted on January 21st, 2008 | Filed under generosity, kidney, organ donation, PKD | No Comments »

… with a book. OK! Magazine reports that “Entertainment Tonight” fashion maven Steven “Cojo” Cojocaru, who appeared on “Oprah” to talk about his shock at learning that his kidneys look like me, has written a book called “Glamour, Interrupted” to describe his cystic troubles.

Cojo tells his “Entertainment Tonight” interviewer, “I want to bring awareness to kidney disease.”

Sounds great, Cojo. We’d love to have your help. Maybe I can meet up with you on your next trip to New York. I’ll help you sell some books, man! It’ll give the press one more reason to cover the event! Drop me a line! kenny@kennythekidney.com — Let’s work together, Cojo!

— Kenny

Posted on January 19th, 2008 | Filed under cystic, cysts, kidney, organ donation, PKD | No Comments »

Travis Donia is such a renal guy that he made sure the word “renal” was defined in the urban dictionary. That just rocks. He made sure “cystic” was there, too. ‘Cause you can’t have the good without the bad; can’t have the supreme without the dehydrated.

And Sharon Flood is renal for a whole other reason — well, *two* whole other reasons: ‘Cause she’s throwing a fancy kidney party just before giving her brother her kidney. What a supremely renal gal!

This kindly man feels uncomfortable because he needed both kidneys of a two-year-old in order to live. But that’s the way the organ shortage works. As Jeff Goldblum said in “Jurassic Park,” life, uh … finds a way.

Finally tonight: Matt Fulgieri’s story has run in Canada, India, and the legendary Russian newspaper Pravda. “Pravda” is Russian for “truth,” and “Izvestia,” which used to be the other major newspaper there, is Russian for “news.” In the former Soviet Union, Russians used to joke that there was no pravda in “Izvestia,” and no izvestia in “Pravda.” Now there’s a Fulgieri in “Pravda,” and that’s some good Izvestia …. — Kenny

Posted on January 6th, 2008 | Filed under cysts, generosity, kidney, organ donation, PKD, renal | No Comments »

My manager, Bill Brazell, considers himself lucky to work for this guy, and was pleased to see him get this recognition in the S.F. Chronicle today. Brazell says Battelle deserves it; says he consistently sees further ahead than the rest of us, and treats his employees well as he takes them along for the ride. Ok, fine. I’ll give a renal human a little credit.

And I’m also happy for this story, all about a little boy with PKD who got to drop a ceremonial first puck and — even more fun — ride the Zamboni at a hockey match. — Kenny

Posted on December 24th, 2007 | Filed under generosity, kidney, PKD, renal | No Comments »

Matt Fulgieri is doing cystic kidneys and their owners a renal favor by getting the word out about his donation. Even if you’re not a kidney, it’s a great story: The guy who booked Matt’s wedding five years ago just gave him his kidney. What a marvelous gift Mr. Rick Bellando has given — not only to Matt, but, as Matt notes, Matt’s sons, wife, and everyone who knows them both. The ripple effect of a gift like this is dramatic: everyone who hears about it is moved. How could you not be? They knew each other just five years. They’re not related. Rick has three kids of his own. He could have decided the risk to them wasn’t worth it. But as he read a story to one of his daughters, he said, “I kept thinking about his little boys, and how unfair it was to them.”

So he gave Matt a kidney. The gift is so fantastic and amazing that this kidney has no other words for it. Fantastic. Amazing. Rinse. Repeat.

See how cool kidneys are? Unlike hearts, stomachs and almost everything else, we know how to share.

Nothing wrong with those other organs, of course. We all need each other.

I’m just saying.

Thank you, Rick, and all kidney donors everywhere. — Kenny

Posted on December 23rd, 2007 | Filed under cysts, generosity, kidney, organ donation, PKD, renal | No Comments »

… So said this lovely nurse in Scotland.

Ain’t it something how this nurse — who’s already given so much of her time to sick people — didn’t burn out, didn’t become hardened, but became even more compassionate? She had to fight off those friends of hers who wanted to stop her. And what a wonderful gift she’s given to a retired carpenter who grew up in the shadow of PKD, and had no one to turn to. (Quite often, people with PKD have a hard time finding a donor, because their relatives — the most obvious potential donors — are carrying the cysts, too.)

Happy holidays, Nurse Ryder, you renal gal, you!

— Kenny

Posted on December 17th, 2007 | Filed under cysts, generosity, kidney, organ donation, PKD, renal | No Comments »

Technorati, and feeling a bit like Steve Martin in “The Jerk.”

Things are going to start happening to me now …. renal things ….
— Kenny

Posted on December 16th, 2007 | Filed under renal | No Comments »

Some kidneys refuse to read the NY Times; they say it’s biased toward livers. Could be; I’ve noticed a lot of stories about alcohol. Anyway, those kidneys, and the humans who agree with them, will today miss a terrific story by Sally Satel, called “Desperately Seeking a Kidney.”

Dr. Satel, a psychiatrist who does some work for the American Enterprise Institute (which also employs Ayaan Hirsi Ali — much to my surprise, I suddenly find myself rooting for two players at the AEI), gave a marvelously honest and thorough description of her own feelings as she searched for an unrelated kidney donor — and of the complicated emotions felt by many recipients and donors. It’s a great read. Really gives us kidneys our due. Kenny gives it two nephrons up.

— Kenny

Posted on December 16th, 2007 | Filed under generosity, kidney, organ donation, renal | No Comments »

Ray Lindenberg and the good workers of SOS (Select Office Suites) have been extremely generous to PKD research over the past 15 months. When my manager, Bill Brazell, moved into 116 W. 23rd Street as an employee of Federated Media in September 2006, he waited a few days before asking Ray, the SOS manager, if SOS ever donated money to charity. “Let me see what I can do,” said Ray. He came back to Bill a few days later with an envelope holding $520 in cash.

A few months later, Ray suggested a White Elephant Sale for PKD. Bill wasn’t even sure what a White Elephant Sale was, but the next thing he knew, his colleagues at the other 95 small companies that rent space on his floor were bringing in old books, ash trays, boom boxes, watches, and in one case, a very valuable pair of crystal glasses. Once he got it, Bill brought a few things, too. Ray organized the sale, and Bertha and other SOS employees staffed it. In just a few days, the sale brought in $1,300 even as it increased awareness of PKD.

As the 2007 Walk for PKD approached, Bill was reluctant to ask Ray for more help. But he thought of his relatives, and asked Ray if SOS might please help with the Walk. Again Ray passed the hat, and this time came back with $810.

So in the past 15 months, Ray and SOS have raised more than $2,600 for PKD. And Ray would like to do more. What a great guy! His support means so much to Bill and to everyone who’s dealing with PKD, which Ray referred to last night as SOS’s “malady of choice.” Heh. Awesome. We’ll take it. Thank you, Ray, and thank you, everyone at SOS.

The photo above depicts me thanking them last night, at the annual SOS Holiday Party (photographed by the intrepid John Schneider). Ray is behind me and to the right as you look at the picture, near the microwave. Also in the photo are Brian Mattlin from Mattlin Mandell; a great guy named Kenny (great name, too), who used to work the night shift at SOS before moving to North Carolina, but came back for the party; and Lee Mandell, also of Mattlin Mandell.

Also at last night’s party I was able to thank Travis Donia and Liz Copic for their support on the web site and in general, and Halley Hopkins and Pin-Bo Tsai. Halley encouraged Rob Czar and Corinne Leigh to make my outfit, and Travis made this site. Thanks, guys! I would literally be nothing without you. — Kenny

Posted on December 1st, 2007 | Filed under generosity, kidney, PKD, renal | 1 Comment »

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